Lets imagine for a minute that instead of living my life knowing about and finding out about epilepsy (because its part of it), I ignored it and denied its existence and the effect that it was having on my life. As you can imagine for most people this would be quite a difficult prospect.
In my humble opinion the range of difficulty that we are looking at would be on a par with hiding a fully grown African Elephant in your front room. It is ridiculous
But not the only one.
Now, don’t get me wrong I’m sure that this may be a doable situation as you can see the elephant is basically invisible to the untrained eye, untrained being someone who was shopping for an elephant lamp…
Right. Back to the original point for a bit. There may situations where people, instead of seeking treatment try to manage epilepsy without any help. Please note that I am using the term manage loosely. By definition that word would imply that there was some sort of organisation or intervention involved .. What if there wasn’t?
What would that make those people? By denying their own condition, are those people denying an aspect of themselves too?
I hold the opinion that watching a person with epilepsy live and not granting that person treatment (if there is treatment available) is tantamount to neglect. It is not good enough to say that a person is worried about stigmatising the person, If this is the reason to withhold treatment then this is still neglect. Do you any less have the condition because you decline the treatment?
In addition to this, the person who decides that the person should or should not seek treatment is, actually doing this for selfish reasons not with a caring heart. And wanting that person to achieve all in life that they are capable of. If I have not had medical intervention though out my life I would not be able to function as adult. This decision was taken by my Mum and Dad without so much as a hesitation. Even the most dangerous of surgeries. Being denied these, would have denied me the opportunity of a career and a life. Yes I live with the knowledge of people’s misconceptions of epilepsy but as a wise man or woman once said. ” Fuck em”.
Ignoring the elephant in the room and supervising the non-treatment of conditions such as epilepsy must be, and probably is, a selfish, act of neglect. I am thankful that treatment options always outweighed possible unknown effects of peoples’ ignorance. But in my experience, people are more understanding and willing to learn than we give them credit for.
It is not good enough anymore to turn the other way to treatment or the condition because of stigmatisation. The regrets if it went wrong would far outweigh whatever people fear.
Having said all this, maybe I’m looking at this from the wrong way around. I feel that all people with epilepsy should have every opportunity without hesitation to gain control of a condition that we know can sometimes take a long time to do so. So the sooner treatment starts the better. But this is different to my point. I’ve been talking about seeing the problem, and doing nothing. There are some people who have a genuine fear, a fear that goes back generations. A fear that makes them mouth the word instead of saying it. Now its these people that I worry about. It is these people who need the support.
Thanks for reading.